We've been back from vacation for a week now but this past week was a little hectic with an all day appointment at the hospital, swim meet, and lots of time with family and friends.
Our vacation away was wonderful. It didn't start off all that great. We had to take Deq to urgent care the morning we were leaving with swimmer's ear. His ear had been bothering him all day Friday but he waited until 10:30 Friday night to tell us. We got up to the mountains with no issues and hit the grocery store and produce stand. Sunday we spent the day at the water park and then ended up in the ER with CJ later that evening. His pain has been seriously out of control where NONE of his narcotic meds are touching the pain at all. After Sunday nights ER visit (where I had to tell the doctor what meds to give him) he took it easier & we were able to stay out of the ER for the rest of the week. We typically spent the days at the water park. Wednesday we did the tour of the new units that they are building and relaxed. We attempted to do the Kids Obstacle Course (Deqlan was dying to do it!) but there were storms in the area that prevented it. We ended up doing the bounce dome and playing a round of miniature golf. Thursday morning before we headed to the water park we took the boys back up the mountain to do the obstacle course and summer tubing. I ended up doing the Mega Zip Line with CJ which is HUGE for me! I do not do heights at all!!! Friday was our last day there. We of course spent the last day at the water park & started packing up to come home. We love our week up at Massanutten. It is absolutely beautiful. We had ducks outside our unit every day and even saw some deer in the yard too. We usually go every other year so it'll be 2 years before we are back and that makes me sad!
Monday morning we were at Duke all day for CJ's blood patch. We did not end up admitted in the hospital this time like in January but we are not seeing the improvements we saw after that one either. I have a feeling we will end up back at Duke sometime this week. His oncologist wrote him out of work for 4 weeks at the end of June (which we still have no explanation as to why specifically). He should hopefully be back at work July 29th.
I hope to start blogging more regularly again. Swim team ends in a week and a half so life won't be so crazy.